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Rockford girl with rare gene mutation meets goal for adaptive bike

Posted at 3:52 PM, Feb 19, 2020
and last updated 2020-02-20 07:44:36-05

ROCKFORD, Mich. — A 6-year-old Rockford girl with a rare gene mutation has reached her donation goal that will allow her to have a special bike to continue staying active.

Alexis Truax is one of 14 people in the world with a mutation to her retinoic acid receptor beta gene, which has affected her vision and muscle tone. She cannot sit, stand or walk on her own and has problems with cognitive development.

Alexis loves being active and especially enjoyed biking until she got too big to be carried. So, the family entered her in the Great Bike Giveaway, where they raised enough money to get her a special bike they can use to take her for rides again.

Her father says someone donated $3,400 on Wednesday and they have met their goal.

FOX 17 invited Frosty Boy Rockford in to surprise the family with some ice cream and some gift cards.