Date: Thursday, October 9, 2014
Location: Van Andel Institute
Time: 6:00 PM
Dress: Cocktail Attire
Attention fashionistas! Couture for a Cure puts guests right next to the fashion runway on Thursday, October 9, 2014. The evening features an exclusive preview of designer Kevan Hall’s latest collections. Couture for a Cure is highlighting rare pediatric disease research.
Living with a rare childhood disease doesn’t mean it’s rare
When a family receives the news that their child has a rare disease, it doesn’t matter that only a small percentage of people understand what they are going through. All that matters is the health and well-being of their child. In fact, rare diseases are surprisingly numerous—one in ten Americans is affected by one of these conditions.
Small patients, big battles
Diseases such as tuberous sclerosis complex (TSC) and aneurysmal bone cysts (ABC) impact children in every corner of the world.
Children living with TSC—a genetic disease that causes non-cancerous tumors to form in organs such as the brain, heart and kidneys—can develop epilepsy, autism and developmental disabilities, among other health issues. Aneurysmal bone cysts destroy healthy bone tissue, therefore preventing mobility and causing severe pain in children with the condition.
You make the difference
Thanks to your support at events such as Couture for a Cure, Van Andel Institute can continue to battle devastating diseases like TSC and aneurysmal bone cysts by contributing to the development of innovative therapies that improve the quality of life for children.